The CJDSGN offers support, information and assistance for family members and friends of patients suffering with suspected CJD and other prion disease and for those at increased risk of developing CJD.
The CJD Support Group Network Pty Ltd is a non-profit company established to receive grants and donations to fund the work of supporting all Australians affected by Creutztfeldt-Jakob disease (CJD) or other prion diseases. The CJD Support Group Network Pty Ltd, trading as the CJD Support Group Network (CJDSGN), has established and maintains a Management Committee responsible for providing and managing the running of the network and projects that assist and support all Australians affected by prion disease.
The CJDSGN provides information, support and assistance to families who are caring for or coming to terms with the loss of a loved one to CJD and is committed to providing resources to educate and inform family members and carers of patients, to facilitate informed decisions and provide best possible patient care.